Wednesday, March 14, 2012
Day 74: Changed My Facebook Picture
I want to start out by saying Thank You to everyone that has emailed me with ideas for ribbons, pins, etc. I am going to try to take care of the time sensitive ones as soon as possible, but even if I am not able to include it in my blog, just know that I won't let a single one go without supporting the cause in some way. As always, if you have random act suggestions or ideas, please email me at 366RandomActs@gmail.com.
One of the emails that I received was from a woman named Kimberly who was reaching out on behalf of her friends. Her friends have a 2 year old son, Connor, that has suffered from a rare disorder, infantile spasms, since he was a baby. Connor has suffered from these spasms (which are essentially seizures), and the medicine he has been taking unfortunately hasn't had a profound effect. So in an effort to allow Connor the opportunity to develop on a more normal path, today he is undergoing surgery to remove 2 lobes of his brain that will hopefully lessen the severity of his spasms. Connor's family has created a purple ribbon to show support for their little guy, and today for my random act of kindness, I am changing my personal Facebook picture and the 366 Random Acts picture to the above ribbon supporting Connor. If it isn't too much trouble, I hope that maybe all of you might be able to do it for today as well. Not only is it a way to support Connor, but it is an effort to raise awareness for Infantile Spasms so that more can be done to eliminate this confounding and debilitating disorder.